Category Archives: Updates

Chris finally has his own custom wheelchair as of yesterday evening, after a long four months of wrangling with the hospital and their wheelchair vendor. The insurance co-pay on this chair was $2,900.  Donations to the fund right now total … Continue reading →

Forgot to mention:  my Mom snared a hairdresser that was visiting the hospital last week, and Chris received his first haircut since the accident! It’s a nice haircut, Chris looks good.

I was down at the hospital two evenings after work last week (Tuesday & Thursday), and noticed Chris was much more alert than I’ve ever seen him before.  He was pretty reliably turning his head to follow folks around the … Continue reading →

It’s been a while since I’ve done full (08:30-22:00) weekday duty at the hosptal… took some FMLA leave Monday / Tuesday (thanks to my department and the human resources folks on main campus). The physical therapy folks very kindly showed … Continue reading →

Looks like we’ll still be here this weekend, so that’s good (not to imply that we have any idea where we’d be going otherwise). On the PT/OT front, my Dad has taken over doing it… he’s had Chris on the … Continue reading →

I just wanted to say thank you to the folks from the HD XL forum that are sending thoughts and prayers, especially on unusually stressful day at the hospital…  helps us keep our chins up.  A bunch of folks have … Continue reading →

On the positive side of things, it seems like Chris is vocalizing a bit more than usual lately, somewhat correlated with recently stopping the anti-convulsant Gabapentin? For instance, when we shifted him up in the bed last night, he groaned … Continue reading →

My folks told me that Chris had another swallow study yesterday evening. The swallowing part works, but he’s unable to propel the material with the back of his tongue. I’d guess that after more than four months of not eating … Continue reading →

THANK YOU to all the folks who’ve come down to the hospital to visit Chris this weekend.  It’s therapeutic for us, and it’s good for Chris to see and hear the people that are rooting for him to recover.  Thanks, … Continue reading →

Figured I’d also provide a general status update.  We’re not sure where we’re heading next.  And we’re not sure when “next” is at this point.  Chris is too young for a nursing home to take him, but the hospital and … Continue reading →